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Protect Funding for PKD Research

To: Rep. Yang Rohr, Sen. Ellman, Sen. Duckworth, Pres. Trump, Gov. Pritzker, Rep. Foster, Sen. Durbin

From: A constituent in Naperville, IL

March 20

I’m writing to express my deep concern over the proposed $859 million cut (57%) to the Congressionally Directed Medical Research Programs (CDMRP) in the recently released House version of the Continuing Resolution (CR). This drastic reduction would reduce CDMRP funding to only $650 million for the remainder of FY25, significantly impacting life-saving research, including critical progress on projects relating to polycystic kidney disease (PKD) and other rare genetic conditions. PKD is a hereditary, life-threatening disease affecting approximately 600,000 Americans. There is no cure, and research funded by the CDMRP is essential to advancing treatments that could slow disease progression, reduce complications, and improve the quality of life for those affected. CDMRP funding has supported groundbreaking PKD studies, helping researchers better understand this disease and work toward innovative solutions. Cutting these funds would be a significant setback for patients, families, and the scientific community. I urge you to Vote YES on Senator Coons and Alsobrooks amendments to prevent a 57% cut to CDMRP and fully fund the program in fiscal year 2025. Protecting CDMRP ensures that critical research for PKD and other rare diseases can continue, bringing us closer to improved treatments and, ultimately, cures for PKD and other conditions. Please stand with the PKD patients and researchers by supporting full funding for the CDMRP for the remainder of this year and beyond. Thank you for your time and consideration.

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